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2 Study Matches

Peer Support for Adolescents and Emerging Adults With Sickle Cell Pain (PRESENCE)

Steffi Siebert, MPH - presencestudy@pitt.edu

NCT06374238
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Inclusion Criteria:

• Aged 16 to 30 years of age at time of enrollment
• Sickle Cell Disease diagnosis of any genotype based on referral or documentation
• Reports chronic pain (≥4 days/week for past 3 months or more) OR A) Being prescribed pain medication to be taken (≥4 days/week for past 3 months or more) OR B) Taking pain medication (≥4 days/week for past 3 months or more) OR C) Receiving non-pharmaceutical pain treatment (≥4 days/week for past 3 months or more)
• Access to an iOS or Android mobile device with internet access
Exclusion Criteria:

• Unable to speak or read English
• Prior hematopoietic stem cell transplant for sickle cell disease
BEHAVIORAL: CBT+ Health coach, BEHAVIORAL: CBT w/o Health Coach ( self-guided), BEHAVIORAL: Usual Care
Pain, Sickle Cell Disease
Sickle Cell Disease, Pain management, Cognitive Behavioral Therapy, Wellness
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Study Locations

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Location Contacts
Ann and Robert H. Lurie Children's Hospital of Chicago Chicago, Illinois Kevin Guerrero - (kguerrero@lueriechildrens.org)
Children's Healthcare of Atlanta Atlanta, Georgia Katyria Thornton - (katyria.thornton@choa.org) Vontarius Howard Jesse - (vontarius.howard@choa.org)
Connecticut Children's Medical Center Hartford, Connecticut Christopher Theriault - (ctheriault@connecticutchildrens.org)
East Carolina University Health Medical Center Greenville, North Carolina Toria Wilson - (wilsonto22@ecu.edu)
Rutgers New Jersey Medical School Newark, New Jersey Kim White - (whiteka@rwjms.rutgers.edu)
The Regents of the University of Michigan Ann Arbor, Michigan Anela Mukherjee - (mukherja@med.umich.edu)
UCLA Mattel Children's Hospital Ronald Reagan Hospital Los Angeles, California Debbie Argueta Rufino - (darguetarufino@mednet.ucla.edu)
UPMC Children's Hospital of Pittsburgh Pittsburgh, Pennsylvania Alex Berkebile - (berkebileak@upmc.edu) Amy Travis - (travisam@upmc.edu)
UPMC University of Pittsburgh Classical Hematology Adult Clinic Pittsburgh, Pennsylvania Steffi Siebert, MPH - (presencestudy@pitt.edu)
University of Rochester Medical Center Rochester, New York Priya Kaushal - (priya_kaushal@urmc.rochester.edu)
University of South Alabama Medical Center Mobile, Alabama Jessica King - (jlking@health.southalabama.edu) T'Shemika Perryman - (tperryman@health.southalabama.edu)
Virginia Commonwealth University Richmond, Virginia Danie Sop, PhD - (daniel.sop@vcuhealth.org)
Wake Forest Baptist Hospital Durham, North Carolina Julie Fountain - (Julie.Fountain@Advocatehealth.org)
Weil Cornell Medical College New York, New York Masiel Infante - (mai4011@med.cornell.edu)

mHealth Intervention for Pain Self Management (PsyMINT)

Sun Jung Kim, Ph.D - sjkim2@vcu.edu

NCT07332377
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Inclusion Criteria:
* In a post-treatment stage with no evidence of disease (complete remission) * Diagnosed with cancer in the past three years * Experiencing cancer/treatment-related pain * ≥ 18 years of age at the time of first diagnosis * Cognitively able to actively participate in an online-based study * Able to read, write, and understand English
Exclusion Criteria:
* Individuals who currently use any medication for psychiatric reasons (including stimulants, and mood stabilizers) * Patients with major psychotic disorders (bipolar disorder or schizophrenia) and/or substance use disorders. * Those who are currently pregnant or plan to become pregnant in the next three months
BEHAVIORAL: Mobile Health (mHealth) Intervention
Pain, Pain Management, Symptom Monitoring, Symptom Management, Cancer Survivorship
cancer survivorship, pain management, mHealth, behavioral intervention, nonpharmacologic intervention, app, digital health
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Study Locations

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Location Contacts
Virginia Commonwealth University Richmond, Virginia Sun Jung Kim, Ph.D - (sjkim2@vcu.edu)